|
|
|||||||
 |
|
|
Thread Tools | Search this Thread | Display Modes |
05-21-21, 03:06 PM
|
|
|
Join Date: Jul 2003
Location: AL
|
Anyone with Addison's Disease / Schmidt's Syndrome / and/or Autoimmune Polyendocrine
Is there anyone here with Addison's Disease, Schmidt's Syndrome (multiple Autoimmune diseases, usually including hypothyroid or Hashimoto's and/or type 1 Diabetes) also called Autoimmune Polyendocrine Syndrome Type II?
I have fought all this thru each one (with other diseases included) and just need to find others with these issues or those with smilar issues and how they manage to get thru the day, move, eat, etc.. I continue to move daily because I feel its as important as my meds, but am learning it can also be counterproductive as well. (just like needing to eat differently for each of these problems and other associated problems). I just wondered if others might be here or do most give upon fitness? I have heard of a few that have run marathons (I have no idea how, lol- and I will never be a runner I don't think, haha) Not needing sympathy, altho I would love your prayers, they are always greately appreciated. I am just wondering where to find others and/or what they do on a daily basis. Thankyou all and many blessings <3
__________________
Romans 5:5-9 No Greater Love!! If You Argue for Your Limitations, You Get to Keep Them! "Accept responsibility for your life. Know it is you who will get you where you want to go, noone else." Les Brown |
|
|
|
05-21-21, 04:04 PM
|
|
|
VF Supporter
Join Date: May 2005
Location: Minnesota
|
I deal with Hashi's and Raynaud's. It's part of the reason I scaled back my workouts to all non impact fusion style workouts. I do a lot of lifestyle modifications and modify my nutrition/eating. There are a lot of people and groups to follow on social media. The support is amazing!
__________________
Jackie Certified Essentrics Instructor, Level 4---February 2017 Yoga Tune Up Roll Model Method Practitioner---December 2021 "Movement is a privilege. You don't have to exercise. You get to exercise. Visit a person whose mobility is severely limited, and you'll appreciate the distinction. Do what you can, count yourself lucky, heal yourself in the process." Essentrics Colorado |
|
|
|
|
05-22-21, 01:20 AM
|
|
|
Join Date: Oct 2009
|
I dont have those disorders, but I do have a rare autoimmune disorder called Pemphigus Vulgaris. It definitely changed my life and took a few years to adjust. I second Jackie's recommendation to seek out online or in person support groups. I am sure there will be guidance on the best kind of exercise to do. I had to take a ton of prednisone & my weight soared, so there was a lot of inspiration & help about weight loss for my condition.
It meant so much to be able to talk to others going through the same thing. Veterans of the disease shared best meds, referred doctors, best vitamins that helped with deficiency specific to our condition, etc.. I would be in so much worse shape if I had not found the support groups. Usually, there is a national foundation that caters to any disorder/disease. Mine is really rare and there is a official foundation for it. They connected me with peers who even helped and came to visit when I was still in the hospital. My prayers are with you & my heart goes out to you! Take it a day at a time & celebrate each little victory. I made it though & so many others have as well - you are doing the right thing by reaching out. Hugs & take care
__________________
Wherever you go, no matter what the weather, always bring your own sunshine!  ~Anthony J. D'Angelo, The College Blue BookYou can't stop the waves, but you can learn how to surf!  ~Jon Kabat-Zinn
|
|
|
|
|
05-22-21, 02:25 AM
|
|
|
Join Date: Jul 2003
Location: AL
|
Bless you both and thankyou. My Dr had put me on an RX and gave me no info. And I realized today, in looking for info, I wasn't even looking for the right things. - and what I needed to be looking for was mostly what y'all said.
thank y'all for answering. It means a lot. I was ready to give up earlier.(Not give up- give up, just feeling alone). Instinct tells you to push harder, and in some things that can really back fire. Bless the both of you, and much health and continued wisdom to you both. Thankyou!
__________________
Romans 5:5-9 No Greater Love!! If You Argue for Your Limitations, You Get to Keep Them! "Accept responsibility for your life. Know it is you who will get you where you want to go, noone else." Les Brown |
|
|
|
|
05-22-21, 06:24 AM
|
|
|
Join Date: Jul 2004
Location: South Carolina
|
JENILU Prayers for you.
__________________
I started my most recent weight loss journey January 2008. I lost 1/2 of my starting body weight and entered into maintenance May 2011. Now the real work begins! You can fight it, or do what you've got to do to get it done. The choice is yours. ~Diana You have the rest of your life to get old. Stay young, as long as you can. ~Diana 10 Pound Slimdown Xtreme Graduate 02/12 Insanity Graduate - I actually survived! LM Combat 02/13 21 Day Fix Survivor! 6/14 Diana
|
|
|
|
|
05-22-21, 03:29 PM
|
||
|
Join Date: Jul 2003
Location: AL
|
Quote:
__________________
Romans 5:5-9 No Greater Love!! If You Argue for Your Limitations, You Get to Keep Them! "Accept responsibility for your life. Know it is you who will get you where you want to go, noone else." Les Brown |
|
|
|
|
|
| Tags |
| auto-immune disorder, autoimmune disorder, hashimoto's disease, hashimotos |
|
|
Linear Mode
