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Old 06-23-21, 02:28 PM  
Schnauzeritis
 
Join Date: Oct 2006
Location: Long Island NY
Bone Infusion Therapy

I just turned 60 and have been diagnosed with Osteoporosis. I thought all of my years of exercising would save me from this fate, but it didn't. I was first prescribed a pill and suffered for a week with diarhea, bone pain and feeling extemely tired. The Doctor thinks it will be easier on my stomach having an infusion. I'm so worried that it's going to make me sick again.
Have any of you had bone infusion therapy? How was your experience?
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Old 06-23-21, 03:45 PM  
Jane P.
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I've had both infusion therapy as well as injections (not at the same time) for about 4 years now. I would get very tired the day after an infusion, but there was no pain. Feel free to PM me, and I can go into more detail since I've been at this for a while.
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Old 06-23-21, 06:44 PM  
pgun3
 
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Quote:
Originally Posted by Schnauzeritis View Post
I just turned 60 and have been diagnosed with Osteoporosis. I thought all of my years of exercising would save me from this fate, but it didn't. I was first prescribed a pill and suffered for a week with diarhea, bone pain and feeling extemely tired. The Doctor thinks it will be easier on my stomach having an infusion. I'm so worried that it's going to make me sick again.
Have any of you had bone infusion therapy? How was your experience?
When you say infusion are you saying IV osteoporosis medication. If you are do not do infusions if you have poor dental health. The IV meds for Osteo can cause healing problems if you need to have teeth extracted. You can end up with necrotic bone.
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Old 06-23-21, 06:48 PM  
toaster
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I don't have any experience with the infusion you are asking about. However, I wanted to share that it is possible to rebuild bone loss. Here is information on yoga for osteoporosis:
https://sciatica.org/?page_id=70

ETA statistics - this is an extremely common diagnosis in women in particular; it doesn't mean you were doing something wrong:
https://www.osteoporosis.foundation/...-north-america
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Old 06-24-21, 04:56 AM  
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Thanks for that link to the IOF, I've been researching this lately. Mark Hyman's podcast interviewed the author, Dr. James Dinicolantonio, of The Mineral Fix and I bought it this week.

Also Bob and Brad the physical therapists interviewed Dr. Sara Meeks, a physical therapist that has osteoporosis, on their podcast. I watched it once and intend to watch it again.
https://youtu.be/ViXK9vd2mLY

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Old 06-24-21, 08:11 AM  
toaster
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Mimi, thanks for the B&B interview with Sara Meeks; I'll try to watch that later.

In doing my own research, I've found that although weight-bearing exercises/strength training are important to reduce/prevent bone loss, balance is just as important, as most broken bones occur due to falls. So, even with severe osteoporosis, excellent balance greatly lowers the risk of breaking a bone.
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Old 06-24-21, 09:54 AM  
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Schnauzeritis, when you ask a question on VF, you will get tons of info.

I have a vertebral compression fracture and some yoga poses are a no-no for me. Any rounded forward bends or deep twists are contraindicated. If you have severe osteoporosis, you may want to check with a physical therapist about what activities are safe for your level.

Here is my additional resource:

Physical therapist Margaret Martin's Melioguide.

https://melioguide.com/

She has sections on Posture, Core, Balance Exercises, Joint Health, etc.
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Old 06-30-21, 03:31 PM  
ealakey
 
Join Date: Jan 2011
Location: Texas Panhandle
Quote:
Originally Posted by Schnauzeritis View Post
I just turned 60 and have been diagnosed with Osteoporosis. I thought all of my years of exercising would save me from this fate, but it didn't. I was first prescribed a pill and suffered for a week with diarhea, bone pain and feeling extemely tired. The Doctor thinks it will be easier on my stomach having an infusion. I'm so worried that it's going to make me sick again.
Have any of you had bone infusion therapy? How was your experience?

For what it's worth, I can share my experience from my OP journey. I was diagnosed with OP last year by my primary care doctor. They strongly encouraged me to have IV Reclast. I really debated on it and then finally decided to move forward. I wish I knew then what I know now, because I've learned so much along this journey. I had a very nasty reaction to Reclast, with ongoing problems. This led me to search for a metabolic bone specialist, and I found one in Denver with many years of experience in the field and additional experience writing research papers on the subject and clinical trials.

My new specialist told me that due to my previous medical history with no fractures, I should never have received Reclast. In fact, I should never have received any medication before the age of 65, no matter what my T- Score. He has been attending the annual OP conferences and requesting the WHO guidelines for DXA recommendations be updated.

So.... I've learned that general care providers tend to be extremely busy with other things like treating heart disease, kidney disease, etc. They have the best intentions but sometimes don't have the bandwidth to become experts and stay current on metabolic bone disease. They may not understand there are sometimes secondary reasons for the OP and additional blood tests may be needed.

My advice.... take the time to find a metabolic bone specialist, if you don't have one already, especially if you haven't fractured. You have time. Learn about the medications and also nutritional things you can do to help support your bone health. Dr. Lani's book is a good one, https://www.amazon.com/Lanis-No-Nons.../dp/0897936612.

With the DXA scans..... there is always a margin of error with them, that either make them look better than they are or not good. I don't remember what percentage it is. Even having your legs not positioned correctly can cause an error in the reading.

My journey is still ongoing. I'm currently waiting on results from a gene test for a condition that causes low bone density....

I wish you the very best.
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Old 07-01-21, 07:51 AM  
Pat58
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Beth (ealakey) thank you so much for sharing your experiences. I have Dr. Lani's book too. I'm pretty sure Alta recommended the Dr. Lani book to me. It helps make sense of things from a woman doctor's perspective and not an "expert" that often writes these type of health manuals.

Good luck with the metabolic bone specialist, I've never heard of such a thing and it's good to know that option is out there. Doctors have been pushing those drugs on me too, and so far I've stuck to my guns. My gut instinct is not to go there.
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Old 07-01-21, 08:40 AM  
Sollamyn
 
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I was diagnosed with osteopenia 2 years ago (at age 60), but I guess I am still in the early stages. My doctor did not recommend any medication at that time, but I am supposed to be retested this summer (this is a good reminder for me to check into getting that done soon!). I'm not sure right now where I stand with getting meds, if it comes to that. My maternal grandmother suffered greatly from osteoporosis and, now, my mother is suffering from it. (Grandma was 95 when she died; Mom is 92 now.) I do not want to be in that position 25 years from now. It's awful. I am trying to follow my doctor's orders re: nutrition and am getting regular exercise, now that my ankle is much better. But will it be enough?

Donna
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